I've had CFS since the Christmas-New Year holiday of 1989-1990 and I have tried everything that my insurance would pay for (and a few things the wouldn't -- like Cat's Claw and other exotic supplements).
.
Some things worked for a while, some didn't work, and some made me worse. But what can you do when the pain, the misery, the sheer awfulness of this syndrome leaves you curled up on the bed whimpering and crying?
.Some things work for some people for a while some times. Something that helped at the very first (two Ibuprofin) became actually laughable later; then came Ultram, a drug of joy because it actually made the pain go away (for me); then came hydrocodone . . . all these, and with various SSRIs in varying quantities -- nothing helped much and not for long.
Somewhere around 2010 (after twenty years) I seemed to reach a plateau. I'm still in the woods of CFS but much of the time I can see the light through the trees. I am so grateful for this.
My suggestion (and this is MY stuff based on MY experiences) would be to try what there is, read up on it, keep a journal about it, and try it for ninety days and make a decision -- but feel free to stop it sooner than that if it is not improving your quality of life.
.CFS is such a horrible thing, and I feel so badly for anyone who suffers with it (including myself) -- but what can you do but (hopefully) find a doctor who understands that it is all too real, educate yourself (and others), and smile sweetly when everyone tells you, ". . . But you look so good!". . . ?
I've had CFS since the Christmas-New Year holiday of 1989-1990 and I have tried everything that my insurance would pay for (and a few things the wouldn't -- like Cat's Claw and other exotic...
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