Hi there- This is a response from FoundHealth user Jackie Sorkin.
Hello, I know how hard this situation is for your brother and family and I know how important it is to keep positive and start searching for more info. My dad has stage IV melanoma as well and has been battling for several years with positive results, essentially beating this a$$hole disease. We found that alternative treatments and western medicine , fantastic surgeons, oncologists and doctors who really care for my dad and want him to beat this monster are part of his success. Here is what he has done- once the cancer metastasized to his lungs nearly 4 years after an initial surgery to remove a tumor on his neck, he went to Mexico to Chipsa hospital and had a combination of both gerson diet ( immune system building) and Coley's Vaccines- This is fever therapy- the body fights the tumors. He also had some special shots made with his blood- called autologous tumor cell therapy ( I think thats correct) My dad had 3 surgeries in 6 months to remove these metastatic tumors- he just finished 5 weeks of radiation 2 weeks ago and in 4 weeks he'll have scans again ( praying for clear scans) The last year has been an active one for melanoma and metastatic patients- lots of new vaccines and drugs and clinical trials are out there for you to check out. Once I was able to stop all the crying and decided to tell my fear to F off, we were able to focus only on my dad and keeping his spirits up and keep him in fighting form. He has been beating this disease. Your brother can too! I will only advise to get second opinions when you can. Changing HMO's and Doctors and Oncologists over this process are what also helped save my dad. His initial oncologist was cold and told him he was totally inoperable and once he left him and the HMO to another- his new cancer team found he WAS operable and fought for him. When someone tells you guys NO- Find a YES! Don't listen to the first opinion- always search for more, don't be afraid to challenge the Doctors and set up Google Alerts so you have the latest information on Melanoma sent to you as it happens. I wish your family and brother peace and strength and although we've never met- you and your family are in my prayers. YOU CAN DO THIS GUYS! BELIEVE, BELIEVE, BELIEVE!
Love, Jackie Sorkin
Hi there- This is a response from FoundHealth user Jackie Sorkin.
Hello, I know how hard this situation is for your brother and family and I know how important it is to keep positive and start...
... (more)That is so awesome Kristin! Great to hear about your triumph over melanoma! If you have any insights on interferon for melanoma, or acupuncture for melanoma, it would be great if you could share on those pages! Hundreds of people are searching for user stories about melanoma on FoundHealth.
Acupuncture: http://www.foundhealth.com/melanoma/melanoma-and-acupuncture Interferon: http://www.foundhealth.com/melanoma/melanoma-and-interferon
Thanks for sharing!
That is so awesome Kristin! Great to hear about your triumph over melanoma! If you have any insights on interferon for melanoma, or acupuncture for melanoma, it would be great if you could share on...
... (more)I can't imagine how difficult this is, but my thoughts are with both you and your brother. stay strong
Nutrition can play a large role in your ability to prevent cancer. Some studies have shown that right nutritional program can reduce the chances that you get certain cancers by over 60%. In addition, nutrition can also help significantly in your battle to fight melanoma, or manage the side effects of some of the treatments you may try.
There is a lot of evidence that suggests that the foods you eat, and the manner in which you eat them, may be able to help prevent cancer and melanoma from occurring. Diet may also help you fight and beat melanoma once a tumor has formed. There are two ways that diet can be helpful. First, there are specific foods that can help prevent and fight melanoma. Additionally, there are specific diets that many believe can be even more effective.
Many individual foods are purported to help prevent and fight cancer, with varying levels of concrete scientific evidence. Here are some of the most promising foods that have either been scientifically studied, or have garnered anecdotal evidence of their potency.
Melanoma-Fighting Food! |
A nutrient called sulforaphane, contained in broccoli sprouts as well as other cabbage-family vegetables such as broccoli, Brussels sprouts, cabbage, cauliflower, and kale has been shown in observational studies to help prevent cancer.
Melanoma and Supplements
There are a variety of vitamins and minerals that can potentially help prevent and fight cancer and melanoma. Some may also be helpful in managing side effects of a variety of cancer treatments.
The There has been a lot of evidence that suggests that vitamin D plays an important part in the prevention and fighting of melanoma. This may seem surprising since the main way people get vitamin D is through exposure to the sun, and sun exposure is something commonly know to cause skin cancer.
The key distinction is between sun exposure and sun over-exposure. In other words, normal sun exposure has not been shown to have any negative effect on melanoma, and in fact, due to the positive effect of producing vitamin D, has actually been show to reduce the risk of melanoma(1). However, over-exposure (i.e. sunburning) has been shown to have a negative effect and is correlated to higher risk of developing melanoma.
There have been many scientific studies done that show the D3 version of vitamin D can be very helpful for some in fighting melanoma. It has been show in some melanoma lines, to stop the melanoma from growing (3), (4), (6), (7). It has also been shown that other mechanisms help to kill melanoma cells(5). Further, another study showed decreased levels of vitamin D3 are associated with increased risk of melanoma. Hence, while it is certainly not guaranteed to work, vitamin D3 should be seriously considered as something to take when fighting melanoma, or trying to prevent its recurrence.
There are a variety of meditation techniques used today. The Chinese, who originated many of the meditative techniques, describe meditation in simple terms as “sitting still, doing nothing” or “mental fasting.” The basic idea is to clear you your mind of all of thoughts and give your conscious mind a rest. By doing this, we begin to be able to train the two aspects of our temporal mind that govern our lives: emotion and intent(1). Here are some of the many techniques used for meditation. Keep in mind that you may find that one type of meditation works better than another for you. So feel free to try a few of them until you find the one that fits best:
Believe in yourself: It’s your body, and your life, and you are in control. Sometimes all of us need a little help, and that’s what your doctors are doing – giving you a little help. But remember, it’s your body. You are as much a part of this fight against melanoma and as any drugs, medicines, or supplements. You can be in control: remember, you are the one who is going to beat cancer, because you are the most powerful weapon of all! Of course, sometimes when you’re feeling down, its hard to believe in yourself all the time. Here are some tips you can try in those moments:
Think Positively – Maintaining a positive attitude, even in the face of great challenge, is an important part of navigating life’s complexities, and an important part of healing. Positive thinking can be an important tool in your fight against melanoma. Here are some ideas for how you can maintain a positive attitude and positive thinking:
Surround yourself with positive people. The people around you can have a profound influence on your own life and attitude. When you are facing a difficult challenge like melanoma, it’s important to surround yourself with the people in your life who are positive thinkers with positive attitudes. When you do spend more and more time with positive people, you will find that their attitude starts to transfer to you.
Maintain a Positive Self-Image – Maintaining a positive self image is an important tool in your battle. Just because you are feeling ill, tired, etc. doesn’t mean you have to feel bad about yourself. Additionally, it is important that you not “spiral” down as you fight your battle with melanoma. Some tools that might help you are: dressing up, keeping yourself groomed and clean, wearing your favorite clothes, going out with friends, and more. You don’t, and shouldn’t let your fight with melanoma stop you from taking care of yourself in a broader sense.
Remember, you can win! – There are thousands of people out there who have faced the same challenge you are facing, and beat it. You can do that too, so believe in yourself and your ability to heal.
Many patients who beat melanoma say that one of the most important things they did that helped a lot was maintaining and positive attitude and positive thinking. The most important attitude of all is to remember and repeat to yourself that you can win! So don’t ever give up. Take mental breaks from your fight with melanoma to get out, get away and forget it about it. And when you start feeling down, repeat positive thoughts to yourself. Remember this: if you think it, you can make it happen.
Maintaining a positive attitude, and positive thinking as you fight melanoma is sometimes hard to do, but very important to the success of your treatment. Those who fight and beat melanoma, even at Stage 4, often cite their ability to think positive thoughts, and stay positive overall, as on one of the most important tools in their melanoma treatment fight. Remember: many people before you have beaten melanoma, and you can too! Don’t ever forget that.
Fighting a challenge like melanoma can be very difficult and cause a significant amount of stress. Unfortunately, as you have probably heard, stress doesn’t help your fight. In fact, too much stress can sometimes have a negative impact. Hence, managing your stress level is an important part of what you can do to help. The good news is that there are many well tested methods for stress management that work. Not all of them will work well for all people, but the important part is to try a number of them until you find the right ones for you.
We manage stress successfully when we learn to control our responses and avoid overreaction. Hence, stress management is a skill, like riding a bike, and once you learn the techniques, they will stay will with you forever. Keep in mind, however, that learning the techniques usually requires regular practice – once a week is not enough for most people in the beginning. Once a day is more appropriate if you want to see dramatic improvement in your skills2.
Your friends a and family can become an enormously powerful and helpful support for you. But in order to make the as helpful as possible, you need to tell them what you need from them. And you need to set up your “ground rules” for being helpful. The fact is, they want to help you, but they don’t really know how – they need your help with this and will appreciate it when you tell them what you want and need.
Here are some examples of ground rules you could set up and communicate to them:
Some people find support groups to be very helpful to them in coping with the challenge of fighting melanoma.
Beyond the studies, however, the bottom line is that sometimes its hard for other people who have never faced this kind of challenge, to understand what you are going through. So some people find it comforting to connect with others who are facing the same challenge and can relate. Be careful though, to surround yourself with positive fighters, not people who are facing melanoma and have succumbed to the victim mentality.
Support groups tend to be organized by the doctors or hospitals for melanoma treatment. Ask your doctor if they are aware of any support groups in your area. If they are not, then check online or try contacting other doctors or hospitals in your area who are treating melanoma. If you can not find a local support group in your area, try contacting the American Cancer Society and try searching for “melanoma support group” on the web – with a little digging you are sure to find a group that you can join.
It may be the case that this challenge with melanoma has made you feel like you’re all alone, and that you’re different than the person you were before. But for the most part, that’s not true. You’re still the same person and your friends and family still love being with you just as much. So make sure to spend as much time with them as you want.
If you are married or have a significant other, remember, you don’t have to give up intimacy while your fighting this challenge. Hugging, kissing, caressing are all great ways to express intimacy while you’re fighting. And remember, that intimacy can return even stronger than it was before the challenge, once you have beaten melanoma.
Nutrition can play a large role in your ability to prevent cancer. Some studies have shown that right nutritional program can reduce the chances that you get certain cancers by over 60%. In addition, nutrition can also help significantly in your battle to fight melanoma, or manage the side effects of some of the treatments you may try.
There is a lot of evidence that suggests that the foods you eat, and the manner in which you eat them, may be able to help prevent cancer and melanoma from occurring. Diet may also help you fight and beat melanoma once a tumor has formed. There are two ways that diet can be helpful. First, there are specific foods that can help prevent and fight melanoma. Additionally, there are specific diets that many believe can be even more effective.
Many individual foods are purported to help prevent and fight cancer, with varying levels of concrete scientific evidence. Here are some of the most promising foods that have either been scientifically studied, or have garnered anecdotal evidence of their potency.
Melanoma-Fighting Food! |
A nutrient called sulforaphane, contained in broccoli sprouts as well as other cabbage-family vegetables such as broccoli, Brussels sprouts, cabbage, cauliflower, and kale has been shown in observational studies to help prevent cancer.
Melanoma and Supplements
There are a variety of vitamins and minerals that can potentially help prevent and fight cancer and melanoma. Some may also be helpful in managing side effects of a variety of cancer treatments.