Hi there- This is a response from FoundHealth user Jackie Sorkin.
Hello, I know how hard this situation is for your brother and family and I know how important it is to keep positive and start searching for more info. My dad has stage IV melanoma as well and has been battling for several years with positive results, essentially beating this a$$hole disease. We found that alternative treatments and western medicine , fantastic surgeons, oncologists and doctors who really care for my dad and want him to beat this monster are part of his success. Here is what he has done- once the cancer metastasized to his lungs nearly 4 years after an initial surgery to remove a tumor on his neck, he went to Mexico to Chipsa hospital and had a combination of both gerson diet ( immune system building) and Coley's Vaccines- This is fever therapy- the body fights the tumors. He also had some special shots made with his blood- called autologous tumor cell therapy ( I think thats correct) My dad had 3 surgeries in 6 months to remove these metastatic tumors- he just finished 5 weeks of radiation 2 weeks ago and in 4 weeks he'll have scans again ( praying for clear scans) The last year has been an active one for melanoma and metastatic patients- lots of new vaccines and drugs and clinical trials are out there for you to check out. Once I was able to stop all the crying and decided to tell my fear to F off, we were able to focus only on my dad and keeping his spirits up and keep him in fighting form. He has been beating this disease. Your brother can too! I will only advise to get second opinions when you can. Changing HMO's and Doctors and Oncologists over this process are what also helped save my dad. His initial oncologist was cold and told him he was totally inoperable and once he left him and the HMO to another- his new cancer team found he WAS operable and fought for him. When someone tells you guys NO- Find a YES! Don't listen to the first opinion- always search for more, don't be afraid to challenge the Doctors and set up Google Alerts so you have the latest information on Melanoma sent to you as it happens. I wish your family and brother peace and strength and although we've never met- you and your family are in my prayers. YOU CAN DO THIS GUYS! BELIEVE, BELIEVE, BELIEVE!
Love, Jackie Sorkin
I know one person recently who had a brain met and was treated in Seattle and it went away. I will try to find out what treatment was used.
In the mean time, a few thoughts:
1) Check out my response in the following thread, it has a lot of good info for you to read about things that can help:
2) Have the docs considered Gamma Knife surgery? I've heard good things about the results for brain mets and melanoma.
3) Check out Alpha Lipoic Acid - it crosses the blood brain barrier and has been shown to cause melanoma brain cancer cell apoptosis (cancer cell death).
I hope that helps.
I am going to call my brother's Oncologist tomorrow. Someone told me that most oncologists don't want herbs and supplements used in conjunction with chemo drugs because not enough studies have been done. He is day #3 on the zalboraf. He goes back to the radiation doc tomorrow and his oncologist on Monday. He is tired and but he is hanging in there and staying positive. He told me he is taking care of himself and he will get better. I have moments where I feel helpless. But then I tell myself to BELIEVE. This is so damn hard!
My wife has the exact situation as you mentioned above. She went through 15 days of radiation and was put on Zelboraft meds. Let me tell you that Zelboraft isn't a cure for melanoma. It only works for a period of time with horrible side effects. It is very painful for many reasons. Days she wasn't able to walk, Back and torso pain, There is another form of skin cancer called Squamous Cells that appear usually on the face or torso that the dermatologist must cut off which is due to the Zelboraft med. 3 months after being on the medication it stopped working and the melanoma found a way around it. There are 2 types of melanoma one that has the B-raft gene that the Zelboraft works on but there maybe another form of melanoma that the Zelboraft will not work on and will make it grow at an excel rate. That's what has happened to my wife right now... The docs say she doesn't have much time left . We are heading to the cancer institute in Tampa Florida tomorrow for a possible blood transfusion.. I hope all is well with you and hope u beat it.....
my husband has stage 5 and he is on zalboraf, it has been positive so fr but in the last month he has had a lot of joint pain and loss f appetite. He has also lost a lot of weight, but he is positive and the cancer has not grown.